Latest News - #Life without limits

In Russia about 20 thousand children's camps passed sanitary examination

About 20 thousand Russian children's camps received conclusions of Rospotrebnadzor about the compliance of sanitary-epidemiological rules, reported on the Agency's website.

Previously, the CPS has issued guidelines for the work of the organisations of rest of children and their rehabilitation in terms of the risk of the spread of coronavirus.

The family of the girl with the AGR from Kaliningrad collected 162 million rubles for the cure

Parents Milana Semenkovo from Kaliningrad, which is a rare genetic disorder - spinal muscular atrophy - managed to collect 162 million rubles for the purchase of one of the most expensive drugs in the world Zolgensma.

When the AGR is gradually lost motor function the child may stop moving or even breathing. The only cure for patients with SMA is registered in Russia, — "Spinoza", the injection must be done throughout the life time of four months as maintenance therapy. The effect will be lost if you miss even one shot.

The government approved the allocation of funds for the indexation of payments to guardians

The Russian government approved the allocation from the reserve Fund 145,6 million rubles for payments to the citizens, who are under temporary custody of the disabled and orphans during a pandemic coronavirus, according to the website of the Cabinet.

"The allocation to the Ministry of Finance of Russia in 2020 from the reserve Fund of the government of the Russian Federation of budgetary appropriations for granting of interbudgetary transfers to the budget of the Pension Fund of the Russian Federation on the implementation of special payments to citizens, who in the period from 1 April to 30 June 2020, to be accompanied or temporary residence (under temporary custody) disabled, elderly, orphans and children left without parental care ... to Adopt the draft Directive of the RF government on this issue", - stated in the message.